Wednesday, September 19, 2012


September 19th, 2012                                                                                     54 Days Outta Treatment

 
Hey Now Everyone,

Sorry for not checking in, been super busy trying to get better…..things are coming along, I guess they are. Went to the Doctor on the 10th, he doesn’t have the best tableside manner, so I gotta tell ya, he didn’t necessarily lift the spirits of Kiki or me……the end goal is to ramp down the meds, notably the morphine, which though it is being received in small doses, CANNOT be quickly ceased due to serious withdrawals….so we are scaling down, and making great progress there.

 
I’m looking for signs….little more beard/goatee/moustache growing back, weight gain, energy…..it’s coming. Believe it or not, the right side of my moustache came out of this thing horizontally sliced in half, top to bottom. So, if desired (NOT) I could grow a little “frenchy,” real thin and straight….well, in the past two weeks, that growth is working its way back down to my lip, and I am ecstatic. Just show me a sign, Jesus, just show me a sign……all I am sporting now is a little soul patch beneath my lower lip. That’s going to have to do it for now.

 
It has been a weird couple weeks since last I scribed…..still trouble getting outta bed, getting going, eating lots…..I had to cancel my Stage MC’ing at Lafayette’s Art & Wine Festival cause I was way worried about that much time in the sun, and heat…..imagine, I had to give up a mic that I’d have on stage all day intro and outro’ing bands in front of 1,000-2,000 people. I hate it when that happens. But I did go down for a spell on Sunday to see this HOT Santana copy cat band called Zebop. They are special, but I got tired in an hour and Kiki and I split to eat.

 
Sunday was a different day. Hung at home all day till about 2:00 PM then went down to see Kiki’s band, Dream Posse play. TONS of people came from far and wide to support her (and me) and we were touched. It got me fired up. Judy, Katherine, Rita, Joan, The Georges, The Carellas, Alison & Greg Vicas, Ilene Leibowitz, the Cliftons,Sue Cost and Dani Robinson, Mike and Shanon, Evie and Eric, the Pooles.  I could and should keep going. We are made our way down the street to see the Sun Kings after that. They do the best damn Beatles covers you’ll ever see, and my dear friend Drew Harrison who does the John part---(funny that a Harrison does the Lennon, huh?) worked me into the lyrics during HELP. Help is the song he played for me at the Lafayette Community Music Festival back in May and I joined him onstage to dance and sway and cry…..cause I need Help and I’m not afraid to ask for it. Net net, he got 1,000 people to cheer for me and support me in my fight against this freakin’ disease and it was beautiful. It gave me hope, energy, fire, legs, love, and spine tingling happiness…….I was with my tribe, I was saluted, I was hugged, I was loved….

That launched me into a solid Monday, which moved to a solid Tuesday and now today, Wednesday….I am getting up, getting dressed, hit the office meeting Monday, going to Crosby, Stills and Nash tonight. Perhaps I’ve turned a corner, I do know I’ll continue to need naps here and there (took one today) but the energy you have all given me throughout this process manifested itself into wind beneath my wings. I am determined to continue to battle, get out with my people, my clients, my family, my friends. EVERYONE tells me I look so much younger….that’s probably cause I don’t have a white goatee anymore.

I’m excited, people….I won’t get a scan till mid October or later, so I am still in limbo there, but we all know we killed this thing, and it is time for your TomCat to get it on and continue on my life quest to live with love, light, energy and be surrounded by my tribe at various junctures here and there.

 Kiki continues to be wonderful and supportive, trying to put weight on these bones (I’m up to 174 or so) and I am gorging on Chow Mein. Had my first burrito Monday, that stuck pretty good, even though it had no hot sauce and less flavor. And it went down with water, beer continues to be cerveza non grata right now.

 
Got a $1.4M listing this week…..I am humbled by the work of my angels. This one is conveniently located right around the corner, a family I moved in here 4 years ago. Job transfer, and they are leaving behind a beautiful, updated home with a new roof, pool, master suite, HVAC and more. In this market, it will be gone in a week!

I want to give a shout out to my college roomie and Best Man (and Best Guy) in my wedding, Dan “Harmon” Kelleher. He had his nagging hip replaced on the 11th, and for the first time, we were both taking morphine at the same time. We were always more the beer and tequila shots guys, anyway…..hang in there, Harm, you’ll be better than ever, and you won’t have to do radiation and chemo to get better! Such a deal!

 
I’m coming around people, I’m coming around. Continue to stick with me, keep the cards coming, they are stacked 8 inches high now, you are an amazing batch of people. Don’t feel bad if you haven’t sent one yet, send one tomorrow, I’ll read it and cherish it. I have the best friends in the world, and I don’t want to say goodbye to any of them yet!

 
By the time you read this, I will have danced and cried at the harmonies of the American Beatles, CSN, playing The Fillmore tonight, and I promise you I will sing and sob during Suite Judy Blue Eyes, the anthem for my long ago fallen comrade, Bert Kirby Haverly, my Cassidy, a spirit gone way too soon, but the guy who took the time to scour the Grateful Dead Parking Lot in Ventura CA, July of 1983 and bring me Kiki (and Carla). Yes, it was Bert, and that was his song, and this will be Kiki and my night. I am yours, you are mine, you are what you are…..don’t let the past remind us of what we are not now.

I love you all.

 TomCat

 

 

Thursday, September 6, 2012


September 4th                                                                                   40 Days Outta Treatment

 

Sometimes I’m up, sometimes I’m down…..damn this thing. Let’s start with some good news. I sold a $1,575,000 house last Friday, that’ll close early October, so YAY! I brought the buyer in, an old friend from Grateful Dead Tour back in 1984/85…..he’s doing pretty well for himself, eh? He’s a lawyer in SF and really on top of his game. The home is here in Lafayette. So, that’s exciting, and important, for sure. Puts me on pace for my biggest year EVER! Hello, go figure. It’s those angels I’ve been talking about. I know I am blessed, and they show up from time to time. And guess what we found in the garage amidst all their crap…..a tray of cassettes with labels like “Ventura County Fairgrounds, July 21/22 1984,” and “Utica, NY 3-11-73.” A DeadHead lived here. I noted it on my Agent Inspection form…….just can’t figure if it’s the kids or the parents.

 
I am getting tremendous support here at home. Kiki has been stocking the fridge with items for me to eat, as I eat in stages……things for the juicer, things that I can get down for dinner, lunch. Right now it is fruits and protein shakes in the juicer, along with lots of pastas with white sauce. Chickens, potatoes, all sorts of veggies like broccoli and string beans and squash. Those are easy. Those don’t go in the blender, btw. Sam has stayed on top of his chores and that has been a big help.

The docs say my eating is way ahead of other patients. My big prob is the taste buds and the salivary glands. They aren’t producing, so it takes a lot of liquid to get things down. That can be frustrating. I have not necessarily been throwing the weight on. I still have the feeding tube which augments my diet. So, after a meal, I will ingest a can via the tube, and that is good for almost 500 extra calories. Still at about 172 and stable, so bummed a bit I can’t get up to 175 and keep it there. Maybe when burritos start tasting good…..understand that it is a challenge to keep weight on. Weird, huh? Huge kudos to Kiki for helping me on my quest to pack on a few. We have yet to run out of ice cream……

Kiki and me and some friends saw John Hiatt up at the Uptown Theatre in Napa on Sunday night over Labor Day. He was fantastic, played ALL his great songs. Honestly, I don’t know what else I would have wanted him to play. What a set list. Had musicians from Lake Charles, LA, Birmingham, and Nashville, so figure out the angles and approaches they took. Great show, great to hear some live music.

 
I want to get back to being me, get back to hiking hills and telling stories and seeing groups of friends and having the energy to get through it all….but that is not here yet, and patient I must remain. Thanks to my phone buddies who allow me to bounce stuff off them, and thanks to you for reading this…..the journey is hard, make no mistake, and I am not done yet, by a long stretch.

Next Doctor appt. is Sept 10th. The next scan is in October, and everything rides on that. Kiki and I both visualize a clean body, just one that took a helluva beating……I want you to visualize the same thing….a cancer-free, non hot-spot scan result……..it’s powerful, and I want you to do it….just a mono-chromed scan paper with no colors!

 Love to all you all for coming back and staying behind me….send me an email, it’s cool, or post up a comment. I want to hear from you……

 

Keep On Keepin’ On,

TS